Glow for Megan - 3km UV Night Run at Prince's Grant

Sun Dec 30, 18:00 - Sun Dec 30, 21:00

Prince's Grant Coastal Golf Estate

ABOUT

Come join us for a great day out with family to help #SaveMegs


Megan was diagnosed with Myasthenia Gravis at 15 years old, and has been battling this disease with a smile. 

Just this year alone, Megan has had to have uterine cancer and an ovary removed, along with a tough battle with PCP Pneumomia which resulted in an open lung biopsy, following her Rituximab treatment last year. She has also been admitted into ICU on a monthly basis for roughly 5 days at a time to have plasmapheresis. 

And now her only hope at any “normality” or even a guarantee at making it to the end of the year lies in having a stem cell transplant. Her medical aid has denied this twice saying that this is seen as an “experimental treatment”. This has not yet been done in South Africa, but there have been fantastic results overseas. 

We need to raise R250,000 to allow us to have this Treatment & we need your help to make this a reality! Megan’s doctor has already minimized all costs possible & is advocating for this treatment as she truly believes this will be life-saving. 

 

Any extra funds that are raised will help keep Megs afloat after the transplant as she will be unable to work for up to 6 months.

 

 

Articles supporting this treatment:  https://www.medscape.com/viewarticle/862817

https://www.ncbi.nlm.nih.gov/pubmed/27043206

https://www.ncbi.nlm.nih.gov/pubmed/19433668

http://www.bloodjournal.org/content/124/21/3996?sso-checked=true

https://www.sciencedaily.com/releases/2016/04/160404133932.htm

https://www.mdedge.com/neurologyreviews/article/108615/rare-diseases/patients-myasthenia-gravis-stem-cell-transplants-may

https://jamanetwork.com/journals/jamaneurology/fullarticle/797020







Check-in for the race begins at 18:00 & the race starts at 19:30