PH Patients Perspective Symposium 2023
Sat May 13, 08:00 - Sat May 13, 17:15
Faircape Health Estate Tokai - CLUBHOUSE
ABOUT
Join us at the first-ever PH Patients Perspective Symposium to be held in South Africa hosted by The Jenna Lowe Trust and PHA SA
For PH Patients, Carers and their families as well as doctors, med students and allied health professionals with a specific interest in Pulmonary Hypertension.
Where: Faircape Health Estate Clubhouse - Tokai Cape Town
When: Saturday 13th May 2023
Time: 08H00 till 17H15 pm - full day symposium
Cost: R250 per person ( state patients can apply for sponsorship by emailing [email protected])
Programme:
08:00 – 08:30 Registration at Faircape Health Estate Clubhouse in Tokai
08:30 – 09:00: Welcome: Gabi Lowe – Director - The Jenna Lowe Trust and Callista Greeff – Chairperson – PHA SA
09:00 - 09:30 Dr Greg Symons: Overview of PH clinic at Groote Schuur - what we are learning from the PH registry and more
09:30 - 10:30 Dr Paul Williams & Prof Greg Calligaro:
Dr Williams Overview of PH clinic and lung transplantation in Johannesburg
Prof. Greg Calligaro: Overview of lung transplantation at Groote Schuur
10:30 – 11:00 Tea break: Refreshments served
11:00 - 12:30 Interactive Panel Discussion with Q&A: Establishing a team - why collaboration and advocacy are so important as a patient
Dr Paul Williams (Pulmonologist); Dr Greg Symons (Pulmonologist) , Judith Johnson (Dietician); Samantha Holtzhausen (Physiotherapist); Jackie Hoare (Professor of Psychiatry); Shaakira Bodhania (PH kids SA)
12:30 – 13:00 Talk by Kelly Du Plessis - Rare Diseases SA: Patient Advocacy – it is important, how do we go about it?
13:00 – 14:00 Lunch break – meal and refreshments served
14:00 – 14:15: Marchelle Lake from Tokai Physiotherapy: The importance of rehabilitation
14:15 – 14:45: Prof. of Psychiatry Jackie Hoare: Mental Health and living with Chronic Illness
14:45 - 15:30: Patient's Stories
15:30 – 16:15: Tea break and an opportunity for patients to talk to and mingle with all the experts in the room
16:15 – 17:00 Prof. David Badesch, University of Colorado, CO (UCD) - Global Expert on PH - The Current Global Pulmonary Hypertension Landscape
17:00 – 17:15: Q&A for 15 mins
17:15: Programme Closing